Additions To Compassionate Allowances

     Social Security has sent out a press release announcing that 52 conditions have been added to the agency's Compassionate Allowance list. Several of the conditions listed are already in Social Security's Listings of Impairments, often with restrictions not included in this list, meaning that this list to some extent contradicts Social Security's regulations! I have not done an exhaustive survey. I expect there are others where an item on this list is included in the Listings but under a more general description. I believe that hepatoblastoma might be an example since all tumors of the liver meet Listing 13.19. Also, if I remember correctly, tabes dorsalis used to be in the Listings but was removed. Here are the newly added conditions with my notation in bold of the ones where there is a Listing:

• Aicardi-Goutieres Syndrome
• Alobar Holoprosencephaly 
• Alpers Disease
• Alpha Mannosidosis
• Carcinoma of Unknown Primary Site Listing 13.27
• Cerebrotendinous Xanthomatosis
• Child Neuroblastoma Listing 113.21
• Child Non-Hodgkin Lymphoma Listing 113.05
• Chondrosarcoma with multimodal therapy
• Cornelia de Lange Syndrome-Classic Form
• Ewings Sarcoma 
• Follicular Dendritic Cell Sarcoma with metastases
• Fucosidosis - Type 1
• Galactosialidosis - Early Infantile Type
• Glioma Grade III and IV
• Hallervorden-Spatz Disease
• Hepatoblastoma
• Histiocytosis
• Hutchinson-Gilford Progeria Syndrome
• Hydranencephaly
• Hypocomplementemic Urticarial Vasculitis
• Hypophosphatasia Perinatal lethal Form
• I Cell disease
• Infantile Free Sialic Acid Storage Disease
• Juvenile Onset Huntington Disease
• Kufs Disease Type A and B
• Lissencephaly
• Lymphomatoid Granulomatosis Grade III 
• Malignant Brain Stem Gliomas - Childhood
• Malignant Melanoma with metastases Listing 13.03
• Mastocytosis Type IV
• Medulloblastoma with metastasis
• Merkel Cell Carcinoma with metastases
• Myocolonic Epilepsy and Ragged Red Fibers Syndrome
• Nephrogenic Systemic Fibrosis Obliterative Bronchiolitis 
• Ohtahara Syndrome
• Orthochromatic Leukodystrophy with Pigmented Glia
• Pearson Syndrome
• Pelizaeus-Merzbacher Disease-Classic Form
• Pelizaeus-Merzbacher Disease-Connatal Form
• Peripheral Nerve Cancer - metastatic or recurrent Listing 13.13.B
• Perry  Syndrome 
• Rhabdomyosarcoma 
• Rhizomelic Chondrodysplasia Punctata
• Schindler Disease Type 1
• Smith Lemli Opitz Syndrome
• Spinal Nerve Root Cancer- metastatic or recurrent
• Stiff Person Syndrome
• Tabes Dorsalis
• Wolf-Hirschhorn Syndrome
• Xeroderma Pigmentosum Listings 8.07 and 108.07