From an op ed piece by Rosie Fletcher in the New Statesman, a British newspaper, written about proposed changes in social security disability benefits in her country:
Another day, another rummage down the back of the benefits sofa to find a spare £12bn. This week: changing Employment Support Allowance to incentivise ill people to get back to work.
One problem: I already have the best incentive to stop being ill and get back to work. It’s called “being ill”. I would love to go back to work because if I were able to work, I would no longer be sick. Long-term illness nibbles away at your identity from the edges, taking out chunks of the things that make you you: the friends you meet, the shops you wander into, the job you do.
I would love to work, if only because it would give me something to use in small talk, a context in which to place myself, the grit around which an imperfect pearl of who I am can begin to re-form.
I would like to have a job. I would like to feel productive. I would like to do more with my day than clutch at cups of tea and switch on the radio because I can’t keep my eyes open for the television. But currently I can’t and I rely on ESA to keep me in teabags.
This proposal makes two fundamental mistakes: that illness and disability are a) passive and b) attractively lucrative. ...
Disease isn’t like a gas meter. It has no notion of economics. It doesn’t switch off because you’ve stopped putting money in. This isn’t some kind of elaborate con I’ve been running, shutting myself away from the world to trick you out of the princely sum of £48 a week. Cutting my benefits won't get me back into work. It will make my life smaller, more stressful. It will make me sicker. ...
This isn’t just a question of economics, of ideological war on the welfare state. This is the insidious, callous notion that sick and disabled people are ultimately not trying hard enough. This says what people with chronic illnesses and disabilities hear all too much from their friends, from their families, from even their doctors: we do not believe that you are ill. ...
#tellit!
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