Five Rare Disorders Added To Compassionate Allowance List

     Social Security has added the following new medical conditions to its Compassionate Allowance list: 

• Fibrolamellar Cancer
• Megacystis Microcolon Intestinal Hypoperistalsis Syndrome
• Megalencephaly-Capillary Malformation Syndrome
• Superficial Siderosis of the Central Nervous System
• Tetrasomy 18p 

     These are all rare disorders. It's rare for any compassionate disorder condition to show up in a disability claim. I've yet to see one.

     It always seems like Social Security adds to the compassionate allowance list when they've got a Congressional hearing coming up and they want to show how, uh, "compassionate" they are. I don't know of an upcoming Congressional hearing, however.

Miami ALJ Maher Having Problems

     I recently posted about the arrest of Administrative Law Judge Timothy Robert Maher of Social Security's Miami hearing office on charges of threatening his girlfriend with a gun in the presence of their child. There's more to the story. Police were called to Maher's residence on three consecutive nights after his arrest. Maher also recently got into what sounds like a road rage incident with another driver.

SSA To Launch GitHub Site -- What's That?

     From Healthcare IT News:

The Agency for Health Research and Quality and the Social Security Administration here on Monday announced plans for kicking off challenges to identify technologies that solve specific problems.

SSA Executive Director of Health IT Jude Soundararajan said here at the White House Blue Button 2.0 Developer Conference that in September SSA will launch a GitHub site with its use case for disabilities. And he said that developer contests will follow.

"We get tons of faxes, tons of unstructured data we want to analyze. Look for challenges around that and look for challenges around FHIR for our use case," Soundararajan said. "I'm looking forward to working with the developer community." ...

     Can someone explain this one to me?

Miami ALJ Arrested

     Social Security Administrative Law Judge Timothy Maher of Miami has been arrested on the charge of threatening his ex-girlfriend with a gun.

Your Daily Conn Case News -- Squatters, File Access And Attorneys Appearing By Video

     The saga continues. From WYMT:

The saga of former disability attorney Eric C Conn continues as U.S. Marshalls began the process of seizing the property where his offices are located in Stanville.

Marshalls say they came to change the locks and to secure thousands of Conn clients medical files. Prestonsburg attorney Ned Pillersdorf who represents many of those clients says more than just files were found when U.S. Marshals went inside.

"He also advised me that once he got there he encountered some squatters who apparently were living in the office," said Pillersdorf. ...

"The Department of Justice has asked Janet [Stumbo, Pillersdorf's wife, a former Kentucky Court of Appeals Judge] to put in an application to be appointed the receiver," said Pillersdorf. "They gave her keys to the office so that she could see what was in there. So she could formulate her proposal." ...

     In other Conn case news, I haven't heard anything yet from Social Security about allowing me to participate in hearings by video but others are hearing that the agency is telling Administrative Law Judges to allow this.

A Sign Of The Times

     Here's a sign that was placed outside a Social Security office in Kentucky where almost 2,000 former Eric Conn clients face the loss of their Social Security disability benefits. Appalred is the local legal services unit trying valiantly to arrange representation for these claimants. They're running short of volunteers. You can help. E-mail maryg [@] ardfky.org or call them at the number you see on the sign. Social Security is trying to run roughshod over these innocent people. Don't let them.

R-E-S-P-E-C-T

Aretha Franklin 1942-2018

House Budget Chairman Wants To Raise Medicare Age And Make Social Security Change

     From the Times Record which may be in Fort Smith Arkansas, although that's hard to tell from the newspaper's website (emphasis added):

A new congressional budget proposal dubbed Brighter American Future would not privatize Social Security or Medicare, but it would raise the age of eligibility for Medicare up to two years and provide alternatives that could help drive Medicare costs down, U.S. Rep. Steve Womack, told a group of citizens Tuesday at a town hall meeting in Fort Smith.

Womack, the 3rd District congressman from Rogers and new chairman of the House Budget Committee, addressed the concerns over Social Security and Medicare presented by Mona Harper of Fort Smith and a group of five others at the University of Arkansas  ... 

The only recommended change to Social Security the budget proposal would make is “closing a loophole with disability insurance” that “allows someone to collect unemployment,” Claire Burghoff, communications director for the House Budget Committee, wrote in an email Wednesday. ...