It's Just A Form

From The Virginian-Pilot:

Struggling through what might be the last year of her life, Laura DeLong Smith heard some good news in late May.

A counselor from the American Cancer Society told her she qualified for a Social Security program that gives monthly disability checks to people with terminal cancer. She was elated.

The counselor coached her on what to say so that processors at the federal agency would steer her to the Compassionate Allowances Program.

Smith made the call, sat for a lengthy phone interview and went down to the Social Security office to sign a medical release form.

Then it got ugly.

She received an eight-page form at her Virginia Beach home asking question after question that seemed strange for someone with a terminal illness: Was she left- or right-handed? What were her hobbies? Did she have pets? Did she make her own meals? ...

She was told that she had to fill it out or she wouldn't get the money. Everyone has to do it, she was told. ...

"I hope that the next person who comes along with terminal cancer doesn't have to put up with this humiliating experience," she said. ...

Mae Novak, a Social Security Administration spokeswoman who looked into Smith's case, said the function report is used to determine eligibility for many programs, not just those serving the terminally ill. ...

"The agency is pleased at the speed at which she was being serviced."

"Many Left Uncounted In Nation's Official Jobless Rate"

You can read or view online the PBS report from last night that sought to make the point that the recession is increasing the number of people seeking Social Security disability benefits and that this partially masks the extent of the unemployment.

PBS To Run Story On Disability Backlogs

I am hearing that PBS News Hour with Jim Lehrer will be running a piece tonight on the rising number of disability claims being filed. Apparently, they will tie the trend into the economy.

I am a contrarian. I think the recent rise in the number of claims filed has little to do with the economy. It has to do mostly with a public perception that the election of Barack Obama as President means that it will be less difficult to be approved for Social Security disability benefits. This causes some percentage of the large milling crowd of potential disability benefits applicants to decide to take the plunge and file a claim.

Who Will Be In That 3%?

Press reports indicate that Democratic Senators are working on a plan to improve health care. The plan would cover 97% of Americans. This begs an important question: Who would in the 3% to be left out? I am afraid that people who are disabled but who are trapped in what amounts to a 30 month waiting period for Medicare will be a major part of the 3% who are left out. Does anyone know?

Update: I have found a copy of the Kennedy-Dodd bill which is the hottest health care bill at the moment. I see nothing in it that would eliminate the Medicare waiting period. This would mean that disabled people would be prominent among the 3% left out.

Too Good To Be True?

From SafeLink:

SafeLink Wireless is a government supported program that provides a free cell phone and airtime each month for income-eligible customers.

And on another SafeLink page:

The process to qualify for Lifeline Service depends on the State you live in. In general, you may qualify if...

You already participate in other State or Federal assistance program such as Federal Public Housing Assistance, Food Stamps and Medicaid.

OR
Your total household income is at or below 135% of the poverty guidelines set by your State and/or the Federal Government.
AND

No one in your household currently receives Lifeline Service through another phone carrier.

You have a valid United States Postal Address. In order for us to ship you your free phone you must live at a residence that can receive mail from the US Post Office. Sorry, but P.O. Boxes cannot be accepted.

In addition to meeting the guidelines above you will also be required to provide proof of your participation in an assistance program, or proof of your income level.

I have a real problem getting up with many of my low income clients because they lack telephone service. Social Security has the same problem since they are dealing with the same population. Is this legit?

Astrue Talks About Public Service

Social Security Commissioner Michael Astrue gave an interesting interview to Federal News Radio recently. You can hear the interview online. Some points I took away:

• Astrue hopes to open additional new Teleservice Centers in coming years.
• Astrue has a longstanding belief that it is a bad idea to contract out customer service. That was his position when working for a drug manufacturer and it remains his position at Social Security.
• Astrue has listened in on calls to teleservice centers and was surprised at the range of questions asked.
• No site has been selected for the new data center. He hopes that the General Services Administration (GSA) will select that site by early next year. He gave no clue on where it will be.
  

State Cuts Hurt The Disabled

From the Topeka Capital-Journal:

Christy Tatum moved four times in two months and is praying for a fifth move to a place she can really call home.

Doctors have diagnosed Tatum, a Topeka resident, with bipolar disorder and post-traumatic stress disorder.

The Social Security Administration, however, has refused her disability application twice, and she has heard the process to appeal that decision could take years she can’t afford.

Tatum now lives at the Topeka Rescue Mission and receives state aid, but she learned in June that the support — MediKan health coverage and $241 each month in general assistance — will disappear in five months.

The budget the Legislature approved for the fiscal year that starts today reduces MediKan and general assistance from 24 months to 18 months for residents for Social Security disability, and it removed the “hardship provision” for extensions. That means any Kansan “unable to meet federal disability standards” who has received the programs for 18 months since 2002 will be cut off. ...

Hancock said between 1,600 and 1,700 Kansans with pending disability cases will lose their MediKan and general assistance today because they have exceeded 18 months.

The "Content Model"

This morning's e-mail included a message from Nancy Shor, Executive Director of the National Organization of Social Security Claimants Representatives (NOSSCR), sent to all NOSSCR members. The e-mail concerned Nancy's other duties as a member of Social Security's Occupational Information Development Advisory Panel (OIDAP). Attached to Nancy's e-mail was a message to NOSSCR members from Dr. Mary Barros-Bailey, the Interim Chair of OIDAP, to which was attached a document titled "What is a Content Model?" I have e-mailed the panel asking that they post the entire lengthy document.

It is obvious from what I received that the Social Security Administration and OIDAP are interested in going ahead with essentially recreating the Dictionary of Occupational Titles (DOT), although in a format that would be more usable to Social Security than the DOT ever was. This would be a very expensive and time-consuming effort.

Let me make some very preliminary observations.

1. Even though the DOT was based upon many tens of thousands of job site observations, it is now widely accepted that the data in the DOT was far from authoritative even at the time it was published. Many jobs had only been viewed one time and data collection methods were inconsistent. Will Social Security be able to do better? People will be watching much more closely now than they were at the time the DOT was created.
   
2. Creating a DOT replacement will be an expensive endeavor. Does Social Security have Congressional and Office of Management and Budget (OMB) backing for this endeavor?
3. Will a DOT replacement created at the behest of Social Security have the credibility it will need? Nancy Shor's e-mail talked of possible Daubert challenges to whatever comes out of this. There is that problem, but a more direct problem is the Data Quality Act.
   
4. If this DOT replacment is to be done, would it not be better to have it done by the Deparment of Labor rather than Social Security?
5. The DOT replacment envisoned by the "Content Model" would include a good deal of information never previously gathered. How practical will it be to even gather this data? The "Content Model" may require collection of data about the mental demands of employment. Is it possible to define whether a job is "high stress" or "low stress" for instance?
   
6. OIDAP and Social Security are interested in gatering data on the extent to which jobs may be restructed to accommodate workers' impairments. Social Security's position to this point has been that Americans with Disabilities Act (ADA) accommodations to workers' impairments may not be considered in determining disability. There are many in the rehabilitation community who regard "disability" as essentially non-existent, that with sufficient accommodation anyone not in a coma can work and that it is the duty of society to provide whatever level of accommodation is required. I find this absurd and dangerous, not just for disabled Americans, but for the American economy. Basing disability determination on a theoretical level of accommodation that can never be achieved in the real world would have a devastating effect upon millions of Americans. In the real world the ADA is virtually a dead letter. The Courts have interpreted it almost out of existence. There have been recent legislative efforts to give the ADA more substance, but it is far from clear that these efforts will succeed. It will never achieve the goal of allowing any person to work regardless of the extent of their impairments. In my view any discussion at OIDAP about accommodation is cause for great alarm.