New Compassionate Allowance List

      A message from Social Security:

Social Security Adds 14 Compassionate Allowance Conditions

Date: Tuesday, August 11, 2026 

 Dear Colleague, 

 Today, Commissioner Frank J. Bisignano announced the addition of 14 conditions to Social Security’s Compassionate Allowances list. The Compassionate Allowances initiative is designed to cut through red tape and allows us to quickly identify claims where the applicant’s medical condition or disease clearly meets our definition of disability. Given the severity of these conditions, claims are often approved based on medical confirmation of the diagnosis alone, helping individuals experiencing life-changing diagnoses receive the support they need as fast as possible. 

 The newly added Compassionate Allowances conditions are: 

• Adenylosuccinate Lyase Deficiency – Neonatal Form and Type 1 
• Aicardi Syndrome 
• Baraitser-Winter Syndrome 
• Beare-Stevenson Cutis Gyrata Syndrome 
• Bohring-Opitz Syndrome 
• CASK-Related Gene Disorders
• Hepatosplenic T-Cell Lymphoma 
• Lafora Disease 
• Malignant Migrating Partial Seizures of Infancy (MMPSI) 
• OPHN1 Syndrome 
• Primary Cardiac Sarcoma 
• Primary Intracranial Malignant Melanoma 
• Uveal Melanoma – with Metastases 
• Warburg Micro Syndrome 

I encourage you to share this important update with your members, colleagues, affiliates, and other interested parties. Sincerely, Nick Perrine Chief Communications Officer

     Think most readers of this blog realize that the Compassionate Allowance list is nearly meaningless. The list is comprised of very rare disorders so it affects few. Virtually all of them would have been approved quickly even without the Compassionate Allowance list. The list does allow for various Administrations to claim they’re doing something for disabled people even though they aren’t.

Larson Loses Primary

      John Larson, the ranking member of the House Social Security Subcommittee, lost his Connecticut primary race to hang on to his seat in the House of Representatives.

A New Position For Dudek

       Leland Dudek, who served briefly as Acting Commissioner of Social Security, is now Advisory Council Chair for Advocates, Counselors and Representatives for the Disabled (ACRD), a group founded not too long ago. ACRD is a rival to the much older National Organization of Social Security Claimants Representatives (NOSSCR). 

     I am quite surprised to see Dudek linked in such a way to any Social Security organization that wishes to help claimants. I expect that Dudek sees himself as a friend to claimants and a supporter of Social Security but his tenure as Acting Commissioner was notable for his cooperation with DOGE and that permanently tarnished his reputation in the minds of most people who support the mission of the Social Security Administration.

Winning!

      A recent message from a colleague:

Does anybody answer the phone at the **** OHO anymore? 

We could not reach a person this afternoon, and apparently no one received the message I left. 

Some gentleman called this morning saying he had a telephone hearing today, but he was late and when he tried to call the OHO no one answered or returned his call.

What’s Going On With CDRs?

      The ranking (Democratic) members of the House Ways and Means Committee subcommittees having jurisdiction over Social Security and SSI have asked the Government Accountability Office to investigate the agency’s decision to assume the role of continuing disability reviews (CDRs).

     I’m not sure that I see anything sinister in what Social Security is doing but I don’t see how it makes sense either. It’s not like there have been problems with CDRs that I’ve been aware of, so why are they doing it..

Agency Performance Stats

      The Social Security Administration has released a highly massaged set of statistics on agency performance. There are many aspects of agency performance not included. I wish things were getting better. They’re not.

One Problem With Those “Trump” Accounts

      From the Center on Budget and Policy Priorities:

Starting this month, families can open Trump Accounts for their children. Those welcoming new babies between 2025 and 2028 will qualify for a $1,000 federal contribution to seed the account. But for some families caring for disabled children — who will need savings the most as they come of age — the accounts could create big problems. That’s because once account holders reach adulthood, the money saved in their Trump Accounts will likely run afoul of the extraordinarily strict asset limits in the Supplemental Security Income (SSI) program for low-income disabled people. If those savings exceed the cap — just $2,000 — it will lead not only to the loss of needed monthly income support from SSI, but could also jeopardize their eligibility for health care and community-based services through Medicaid. …

Yesterday’s Senate Hearing

      Yesterday, the Senate Finance Committee held a hearing on the looming depletion of Social Security’s Retirement and Survivors Trust Fund. Of course, you’d expect a serious nonpartisan discussion of the options. Right. The reality is that there were sharp divisions between Republicans and Democrats. Democrats favor a plan to remove the cap on wages subject to the FICA tax. Republicans thought that idea was terrible but had no plan of their own or at least not one they’ll release.

     Actually, it’s fairly easy to figure out the Republicans plan. They will demand a plan that includes both benefits cuts and tax increases. However, the overwhelming majority of Republican legislators will vote against the plan. They will only supply the bare minimum number of votes needed for passage. Then, they’ll campaign against Democrats for cutting benefits and raising taxes. Jujitsu! I don’t think Democrats will fall for this but maybe they’ll never have control of both houses of Congress and the White House as well as the will to get past the Senate filibuster so they can do what they think needs to be done.